Yes I have ALS, and I find that the disease is affecting my body and mobility. But ... I want to have a life besides being ALS patient. So my goal is to have a highlight every day of my life.
Last few weeks were good weeks. Today: I went to the swimming pool with my husband. I had not been swimming for almost 8 weeks, because I was afraid that I could not climb out of the pool. But today I was there again. I could walk and swim in the water. I could stretch the limbs of my feet and relax in the water. It was great.
Last weekend: we went to the river Schelde near where we live. In the water we saw a porpoise (bruinvis) jumping out of the water. Also we saw a buzzard, being was attacked by smaller birds protecting their nests. It is very beautiful outside in Zeeland (Holland) The weather was nice, Frans was playing his bagpipes and people came to listen to him.
Last weeks we invited several guests for lunch or dinner at a nice restaurant, just to celebrate friendship. It were lovely days and evenings, with much friendship.
Also I went to band practice with the wood wind band. I love playing the clarinet and it gives me lots of pleasure. I bought a new book for playing piano, it came the next day and I have now a lot of new tunes that I can play on the piano.
Last week we booked our holiday for this summer. We will be going to Scotland for two weeks in August. One week in the countryside and one week in Glasgow, the most vibrating and interesting city of Scotland. We will be there for the pipe festival. I keep my fingers crossed that I will be able to go on that trip. But I am confident.
So you see: ALS is not all there is.
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Hey Lianne!
ReplyDeleteIk zag op je hyves een verwijzing naar je blog en heb meteen even gelezen. Blijft bizar dat jij dit meemaakt, maar then again... Wie zou je dit wél gunnen?! Niemand toch... En inderdaad: ALS is not all there is. Maar 't is wel bijzonder knap dat je je dat ook daadwerkelijk realiseert en probeert van alles te genieten! Keep it up!
Groetjes, Debbie
My husband was diagnosed with MND ALS (amyotrophic lateral sclerosis) when he was 69 years old 6 years ago. The Rilutek (riluzole) did very little to help him. The medical team did even less. His decline was rapid and devastating. The psychological support from the medical center was non-existent and if it were not for totalcureherbsfoundation .c om and the sensitive cure of their herbal formula he would have been not been alive today,there was significant improvement in the first 4 weeks of usage that gave us hope that he will be alive,His doctor put him on riluzole, letting us know there was no cure until we gave try on total cure herbal supplement that cure him totally from this disease after 15 weeks of his usage. There is nothing positive about cure ALS condition except for their herbal treatment .
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